Monday, May 20, 2013

AGENDA: Victoria Lyme Awareness and Support Sunday May 26, 6 to 8 pm


MEETING:  Sunday, May 26th, 6 to 8 pm, Four Mile Bar & Grill -
Tea Room, 199 Island Highway ,Victoria , BC  250-479-2514
Ask for the TEA room, which is reserved under "Victoria Lyme".  If you
are having dinner, be prepared to order right away. Remember we are
welcome regardless of whether we order food. You can find the menu at
http://www.fourmilehouse.com/restaurant_menu.html. Note there are
gluten free options.

DRAFT Agenda
Note that some items may be carried forward to the next meeting to
ensure that members have time to express and address concerns and
questions.
*Please let us know if you would like us to add to this agenda by
emailing us at victorialyme@gmail.com

INTRODUCTIONS. Welcome message.
First time attendees are encouraged to use this time to introduce
themselves and share any issues or ask questions.

UPDATES

1. Lyme Disease Rally, May 2013, Victoria, BC Canada - Avery's speech http://vimeo.com/66527307


3. Lyme Support Library  - our group's library can give you the chance
to read a book and decide if you would like to purchase for your own
personal use, or save your money. Are there any books that anyone
would like to see in the library? Do you have a book or DVD to donate?
$10 to join the library, one book out at a time, to be returned at
next meeting.  Our library books/dvds:

    Beyond Lyme Disease
    Ending Denial:  The Lyme Disease Epidemic
    Healing Lyme, by Stephen Buhner
    NEW!  Healing Lyme Disease Coinfections - Bartonella & Mycoplasma, by Stephen Buhner
    It's All in Your Head - Around the World in 80 Lyme Patient Stories
    Living a Healthy Life with Chronic Conditions
    The Top 10 Lyme Disease Treatments
    Treatment of Chronic Lyme Disease
    Under our Skin (DVD)

4.  T-shirts - we have a few extra t-shirts left over for sale.

DISCUSSION

5.  Review of our Lyme Awareness Event. 

6.  Change in venue and time of our meetings.  We have booked the Yakimovitch Wellness Centre (1454 Hillside Avenue) for the fourth Sunday of each month from 2-4 pm beginning on June 23rd.  We would like feedback on whether this time/location will work better.  

INFORMATION

7.  Recent studies, news, and articles:

a)  Macular Hole a rare complication of Ocular Bartonellosis - http://www.ncbi.nlm.nih.gov/pubmed/23681239 

b)  Lyme vaccine being tested:  http://www.sciencedaily.com/releases/2013/05/130510075337.htm

c)  Recent 2 hour long radio program featuring Lyme researcher Alan MacDonald, MD <http://www.blogtalkradio.com/in-short-order/2013/05/05/in-short-order--dr-alan-macdonald>

d)  Read the latest Lyme Disease news:  http://lymedisease.org/news/index.php 

e)  Ehrlichiosis can be spread via blood transfusion:  http://www.huffingtonpost.com/2013/04/03/ehrlichiosis-blood-transfusion-tick-infection-9-year-old-boy_n_3009093.html 
INFORMAL DISCUSSION (information sharing, support, orientation for
newcomers, questions, ideas for upcoming meetings)

***NEXT MEETING  2-4 pm on June 23rd.