MEETING TIME Meetings are held on the fourth Sunday of each month. T Coffee and tea are provided free of charge. This month we will have a light potluck lunch from 1 – 2 pm and start the meeting at 2 pm. Please bring along a light lunch item to share (e.g., salad, veggies & dip, gluten-free foods, fruits etc – nothing too messy please). We will provide paper plates, napkins and cutlery.
AGENDA
Note that some items may be carried forward to the next meeting to ensure that members have time to express and address concerns and questions.
*Please let us know if there is something you would like us to add to this agenda (news, discussion topic, etc) by emailing us at victorialyme@gmail.com
INTRODUCTIONS & SUPPORT FOR NEW MEMBERS
Welcome message to new members. The first hour or so of our meetings is for new attendees to introduce themselves, share their concerns, and ask questions.
UPDATES
1. Lyme Support Library - our group's library can give you the chance to read a book and decide if you would like to purchase for your own personal use, or save your money. Are there any books that anyone would like to see in the library? Do you have a book or DVD to donate? $10 to join the library, one book out at a time, to be returned at next meeting. Our library books/dvds:
Cure Unknown: Inside the Lyme Epidemic (Revised Edition, 2013), by Pamela Weintraub
Healing Lyme Disease Coinfections - Bartonella & Mycoplasma, by Stephen Buhner
Checklists for Bartonella, Babesia and Lyme Disease, by Dr James Schaller
Beyond Lyme Disease, by Connie Strasheim
Ending Denial: The Lyme Disease Epidemic
Ending Denial: The Lyme Disease Epidemic
Healing Lyme, by Stephen Buhner
It's All in Your Head - Around the World in 80 Lyme Patient Stories
Living a Healthy Life with Chronic Conditions
The Top 10 Lyme Disease Treatments
Treatment of Chronic Lyme Disease
Under Our Skin (DVD)
Living a Healthy Life with Chronic Conditions
The Top 10 Lyme Disease Treatments
Treatment of Chronic Lyme Disease
Under Our Skin (DVD)
Books can be borrowed for one month. Please be courteous and return borrowed books on time as others may be waiting to read them.
2. T-shirts and Buttons - we have a few extra t-shirts left over for sale (Tara) and more of Parker (Sparky) Goertzen’s buttons for sale (Dave).
3. Facebook page for people with Lyme disease on Vancouver Island is up and running (Merina, Caroline, and Ryan). Ask to join the Victoria Lyme Group. The group is private - others can see who the members are, but only members can post and read posts, invite and approve new members.
4. Under Our Skin Contest - Graham Goertzen’s video coverage of our Lyme Rally on May 11th at the BC Legislature has won the contest sponsored by the producers of Under Our Skin. Portions of his video will be included in the upcoming revised edition of this documentary movie.
DISCUSSION
5. Emma Wilson-Pease, a Mount Allison university student who has offered to assist our group and who will be creating a new media kit for CanLyme will be attending our meeting.
6. Bill C-442, National Lyme Disease Strategy (Dave).
7. With less than one year left to negotiate a 2014 Health Accord, the Council of Canadians is asking you to tell your health care story, and send a powerful message to our elected representatives. Use your video camera or webcam and tell them about a great experience you had with public health care and why we need to protect it. Talk about difficulties you had getting care and why we need to strengthen medicare. Talk about gaps in the current system where we need to expand health care. Then email your video to the Council of Canadians’ YouTube channel. Visit the Council of Canadians website at http://www.canadians.org/
5. Emma Wilson-Pease, a Mount Allison university student who has offered to assist our group and who will be creating a new media kit for CanLyme will be attending our meeting.
6. Bill C-442, National Lyme Disease Strategy (Dave).
7. With less than one year left to negotiate a 2014 Health Accord, the Council of Canadians is asking you to tell your health care story, and send a powerful message to our elected representatives. Use your video camera or webcam and tell them about a great experience you had with public health care and why we need to protect it. Talk about difficulties you had getting care and why we need to strengthen medicare. Talk about gaps in the current system where we need to expand health care. Then email your video to the Council of Canadians’ YouTube channel. Visit the Council of Canadians website at http://www.canadians.org/
8. Complex Chronic Diseases Program – Open House
Date: Thursday, September 12, 2013 from 2:00pm-4:00pm
Guest Speakers: 2:15-2:45pm
Refreshments preceeding speakers
B400-4500 Oak Street
Vancouver, BC V6H 3N1
BC WOMEN’ S HOSPITAL
COMPLEX CHRONIC DISEASES PROGRAM
Directions: The CCDP can be accessed from the Heather and W. 29th Avenue parking lot entrance through Entrance #77. Please take the main elevators up to the 4th floor and follow the signs to the CCDP.
RSVP to:
Phone: 604-875-2000 ext. 4892
Fax: 604-875-2177
E-mail: irit.ingel@cw.bc.ca
9. Children’s book, “Hide and Seek: No Ticks Please” for Island and elementary school libraries. Fundraising project?
INFORMATION
10. Recent studies, news, and articles, and useful websites:
a) Lyme Info’s Lyme Disease Directory: www.lymeinfo.net/directory.
10. Recent studies, news, and articles, and useful websites:
a) Lyme Info’s Lyme Disease Directory: www.lymeinfo.net/directory.
b) A ‘good news’ story: http://www.nashuatelegraph.
c) National Post: http://life.nationalpost.com/
d) Salmon Arm Observer: http://www.saobserver.net/
e) CBC TV story on Lyme (August 7) http://www.cbc.ca/player/News/
f) Environmental Working Group’s guide on effective and safe bug repellents: http://www.ewg.org/research/
g) Join the LymePowerOfUs Campaign: www.ilads.org/lyme-powerofus.
h) Huffington Post, In Search of Solutions – Ticks: http://www.huffingtonpost.com/
i) Janet Sperling (CanLyme) webinar on Lyme https://prowebinars.
j) Anti-biofilm potential of pomegranate http://www.ncbi.nlm.nih.gov/
k) Keep up with the latest Lyme Disease news: http://www.ilads.org/ilads_
INFORMAL DISCUSSION (information sharing, support, questions, ideas for upcoming meetings)
***NEXT MEETING 2-4 pm on Sunday, September 22nd.
